When Trust Breaks Down

Neurodivergent patients often have bad experiences when they try to get medical care. In this video, neurodivergent people share their stories.

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Summary
  • Many neurodivergent people have had negative healthcare experiences. They feel misunderstood and ignored. They describe that their healthcare experiences have been traumatic, because of the way they were treated by clinicians. This results in avoiding healthcare in the future.
  • Panelists shared their experiences, and named specific things about past healthcare experiences that were distressing.
  • Discussion is also had about what clinicians can do to make neurodivergent patients feel safe during healthcare appointments.
Key terms:
Neuro-immuneRelating to the nervous system and the immune system, the two systems that keep us safe.
Mast cell activationSee https://tmsforacure.org
DysautonomiaSee  https://www.dysautonomiainternational.org/
Access needsWhat anyone needs for full and meaningful participation. Everyone with all types of brains has access needs.
DysregulationWhen a person’s nervous system feels unsafe or is reacting to something stressful.

For more information about the common medical conditions discussed during this panel, visit Everything is Connected to Everything: Improving the Healthcare of Autistic and ADHD Adults.

Attribution:
Community Panel (5/13/2025)
Year Published:
2025
Video Length:
43:49